We are Steemit and We can Make a Children Dream!

https://files.steempeak.com/file/steempeak/cryptomaniacsgr/EiHqjPLO-72396881_134682321242944_8965808998506823680_n.jpg

--- Hello people around the World! >Being healthy is the most important thing in our lives, the greatest good in my humble opinion. But this good it's not guaranteed, many people born or disease in time and fighting daily for a better life or just a life. **LET'S HELP THIS YOUNG HERO TO STAND ON HIS FEET!!** Like my previous [post](https://steempeak.com/life/@cryptomaniacsgr/let-s-help-this-little-hero-to-stand-on-his-feet) a month ago, same now i will start with the importance of someone being healty to enjoy the ultimate gift "Life". >Spinal mascular atrophy (SMA) is a relatively rare neuromuscular disease genetically predetermined. Progressive degeneration of the muscles of the limbs leads to mild or severe motor disability, wheelchair fracture, and eventually death, as post-cystic fibrosis is considered the second deadly disease for the Caucasian racial type. The young Greek Panagiotis - Rafael Glossiotis, 17 months old, suffers from severe degenerative disease of Type 1 Muscular Atrophy, which is the number one cause of infant mortality. He was diagnosed with the above disease, 3 months old and has received the only approved treatment in Europe of the drug Spinraza at Children's Hospital. He has made 7 injections and the benefits of treatment are obvious to our little hero! ^{A quote of my previous post} Back then it was a petition to enable the Greek State to take care of the expenses of the medication (it's over 3M $), unfortunately the Greek Government and the competent authorities rejected twice the request of the parents (the father happens to be my childhood friend), with the excuse that there is no study of the efficacy of this treatment (approved and already used in USA [FDA](https://www.fda.gov/news-events/press-announcements/fda-approves-innovative-gene-therapy-treat-pediatric-patients-spinal-muscular-atrophy-rare-disease?fbclid=IwAR1uG_fEi3PpAa9KeQmaEo_hBqp3qJ3ciQzh45gSC7DfwDpNuVA7TLdyEnQ)) and the lack of documentation (they have all the necessary documents). You can imagine how the parents felt with that announcement, 3 Million Dollars is very large amount and cant afford it. But like our little hero, the parents are strong too, they will not let their little angel to fight alone, they hope that this fight could be everyone's fight. In order to achieve that, they created a fundraiser account with the help of [MDAHellas](https://mdahellas.gr/donations/226-rafail/) (since the State is absent) and the response of the regular people is touching! The regular people (me and you), managed to raise the fund in lees of 10 days over 800K euro, so yes our little hero has an army now, an army of love! ### What are "WE" Steemians could do for him? I think the answer is obvious, "WE" can give him some of our Steem love helping him to continue dreaming and finally achieve that dream, a dream that may be obvious to the most of us, but for him is a huge daily fight, the **dream of a healthy life!** ### The liquid steem of this post and any possible steem donation will used for that purpose. --- Here's the official Facebook page and some links in case you want to directly help! - [Facebook](https://www.facebook.com/%CE%93%CE%AF%CE%BD%CE%B5-%CE%BF-%CE%AE%CF%81%CF%89%CE%B1%CF%82-%CF%84%CE%BF%CF%85-%CE%A0%CE%B1%CE%BD%CE%B1%CE%B3%CE%B9%CF%8E%CF%84%CE%B7-%CE%A1%CE%B1%CF%86%CE%B1%CE%AE%CE%BB-112576106786899/) - [Paypal](https://www.paypal.com/pools/c/8iEhLKho05) - [MDAHellas](https://mdahellas.gr/donations/226-rafail/) - [Gofundme](https://www.gofundme.com/f/saving-panagioti-raphael?fbclid=IwAR2T15PO0kVi-txFIhB2GfeYhe0BuiQlSO5_VbNHWGryqVcjwBwuqFAj1d8) --- # VOTES and RESTEEMS ARE GREATLY APPRECIATED
Originally posted here: https://steemit.com/life/@cryptomaniacsgr/we-are-steemit-and-we-can-make-a-children-dream